Bill and I took Josiah back to Children's for a follow-up with his neurosurgeon. It ended up being perfect timing since we were wanting to get feedback on what our orthotist said. The doc took some measurements, but said Josiah's head shape already looked better than the last time, which was a couple of weeks before we got the band. He measured the top of Josiah's head cross-diagonally both ways. He said in a neuro-typical baby, the measurements should be about the same. When he first measured Josiah, there was a 3 cm difference. Now there's a 1 1/2 to 2 cm difference. So his head definitely has been shaping out with at least a 1 cm improvement. That was encouraging to hear since the orthodist seems so subjective to me and isn't able to give us any objective numbers to look at.
Our neurosurgeon continued to tell us that he did not think that there was anything else going on with Josiah... that he had a classic case of plagiocephaly and that we should just keep doing what we're doing since it seems to be working well. He seemed very sure that it wasn't necessary to do a CT scan to see if anything else was going on. As long as Josiah wasn't vomiting and was hitting his developmental milestones, we were on the right track. So that was quite a relief to hear. I was a bit discouraged to keep hearing from the orthodist that there wasn't much improvement or "as much improvement as she would like" in Josiah's head shape without any objective measurements to go on.
We will set up an appt with one of the specialists on the list the orthotist gave us, just to get a 2nd opinion on what the neurosurgeon said. We would so appreciate your prayers for more clarity and wisdom on this subject. =)
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